This past week it has been made official that the Health Outcomes Observatory (H2O) consortium is collaborating with the Dutch National Health Care Institute, The Danish Medicines Agency, the Danish Health Data Authority, and Aarhus University Hospital to set up the pan-European H2O Health Outcomes Observatory, a virtual ‘hub’ for the collation and sharing of Patient Reported Outcomes (PROs) with patients, providers, regulators, and healthcare decision-makers.
This new Pan-European Observatory will lead on:
- Implementation of outcome standards for measuring PROs in a way that is practical and simple to apply within clinical practice.
- Establishing governance principles for H2O, such as data governance, design of the overall network architecture and technology platform, and sustainability as a not-for-profit Enterprise.
- Holding metadata (not identifiable patient data) securely and ethically.
It should be noted that this is a vital step towards achieving the mission of the H2O, which is to establish standardized outcomes sets, so clinicians and patients can speak the same ‘language’, thereby strengthening the voice of patients and informing and enriching shared decision making in healthcare delivery across Europe as well as informing health technology assessment.
Original Source: H20